GFREI-GE2P2 Global :: Near-Horizon Public Consultation Opportunities –August 2024
Request for Information: Strategies for Maximizing Public Engagement in NIH Supported Clinical Research
NIH [USA} Responses must be received by no later than August 14, 2024. NIH is seeking information to assist the agency in developing additional engagement strategies that ensure public voices are meaningfully incorporated in NIH supported clinical research studies. This request for information (RFI) is part of a larger NIH effort to develop a vision and framework for incorporating public voices in all phases and types of clinical research. To accomplish this, NIH asked the Novel and Exceptional Technology and Research Advisory Committee (NExTRAC) to form the ENGAGE Working Group. This Working Group includes patients, advocates, researchers, clinicians, non-profit representatives, and more.
Request for Information on the National Institutes of Health Draft Public Access Policy
National Institutes of Health, HHS. Comment due 16 August 2024
SUMMARY:
The National Institutes of Health (NIH) is soliciting comm ents from the public on
the NIH Draft Public Access Policy and two supplemental draft guidance documents regarding
government use license and rights and costs for publications. The NIH Draft Public Access
Policy builds upon NIH’s long history of providing public access to scholarly publications
resulting from the research it supports and proposes additional steps to accelerate access.
Background
Increasing access to publications resulting from NIH funding offers many benefits to the
scientific community and the public who funded the underlying work. The ability for patients,
families, and members of the public to access published findings resulting from NIH funding
enables them to better understand and address the most critical public health concerns facing
their communities. It also allows researchers, students, and health care providers in all
communities to have equitable access to such content. This access can accelerate future research,
lead to collaboration, and allow interested readers and patients to keep up more closely with
critical advances. Importantly, these goals also reflect NIH’s commitment to responsible
stewardship of the Nation’s investment in biomedical research by improving transparency and
accessibility of taxpayer-funded research.
Global Forum for Research Ethics & Integrity :: GFREI 